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Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - Butterfly Children
descrizione: A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB ...
Ricerche popolari: ebpatient
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3.0 / 5.0, recensione di Sites Like Search
Lingua: English
Argomenti sito: conditions
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and ...
Valutazione del sito:
3.0 / 5.0, Lingua: English
Information, mailing list, pictures, and help for new parents.
Valutazione del sito:
3.0 / 5.0, Lingua: English
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.
Valutazione del sito:
3.0 / 5.0, Lingua: English
Features organization background, information about the disorder, fundraising and research details, and news.
Valutazione del sito:
3.0 / 5.0, Lingua: English
The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments ...
Valutazione del sito:
3.0 / 5.0, Lingua: English
Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...
Valutazione del sito:
3.0 / 5.0, Lingua: English
A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to ...
Valutazione del sito:
3.0 / 5.0, Lingua: English
Free patterns including hats, mittens and ear mitts for all ages. Also baby patterns: layettets, hats and socks.
Valutazione del sito:
3.0 / 5.0, Lingua: English